Coping and support

Caring for a baby with a serious heart problem such as tricuspid atresia can be challenging. Here are some strategies that might help:

• Try to maintain normalcy and closeness. Maintaining a regular daily routine will help both you and your child. Even if your baby is in the hospital, try to spend as much time together as you can. Include other children you have. Family bonding is important for your baby's social and emotional development.
• Seek support. Ask family members and friends for help. Ask your child's cardiologist about support groups and other types of assistance. The American Heart Association offers a support group called Mended Little Hearts.
• Record your baby's health history. Write down your baby's diagnosis, medications, surgery and other procedures and their dates, the name and phone number of your child's cardiologist, and other important information about your baby's care. It's also helpful to keep copies of surgical reports.
• Talk about your concerns. As your child grows and develops, discuss your concerns about his or her health with your child's cardiologist.

Remember that many children with congenital heart defects, such as tricuspid atresia, grow up to lead full lives.